About caregiverbobby

As strokesurvivorannie's caregiver, I plan to use this corner to communicate tips for being a caregiver that are practical, authentic, helpful, optimistic, and share the humorous side. You get a different person back from the hospital. The elasticity of the brain will let the old and new personality develop, but you have to be patient.



Tuesday, July 26, 2011

Caregiver break...


Annie is off on her own again. The last NIH visit for a final assessment. I get a couple days off. Nice. Good perspective moment to catch up on thoughts and work on projects. I’m installing an arbor over the next two weeks. My contract work is slow this time of year (Ramadan) so suddenly I have time on my hands.
Sidebar tip for the day: Want to have your survivor not ask you the same thing multiple times? Get them to repeat it back. Then when they ask again you can say, “What was it you told me the answer was?” Works like a charm. Lowers frustration and blood pressure. Your friends will think you’re being mean but they don’t live it everyday. “You’re not helping” said with a smile usually stops the stern look.
Annie also uses her iPhone as a form of memory. She can catalog her day, store her thoughts and remember communication. Again, friends will say “You sure text a lot” and a smile usually clears that one without further comment. I doubt Apple has a stroke app but they should. Quick thoughts and reminders. It is a godsend for when Annie travels. A quick note. A short “I’m okay” and the day can progress. It is a wonderful world with all this technology. Without it she’d be home bound or worse.
Oh, and there is no safer place for her than the airports. Once released into the system she has dozens of people offer support and care. And they’re all screened! The airlines do a very good job with the handicapped. They get it. And they get her out and back safely. I need to think of some way to thank them.

Sunday, July 24, 2011

Sunday the 24th


It’s Annie’s 54 birthday. Milestones in time always bring flashbacks to the time in the hospital. Cannot help it, they are as current in my mind as though it were yesterday. Annie is on her stationery bike reading a story about a woman waking up in intensive care after a car wreck. I am reminded of the sounds, lights and smells of the intensive care ward at Seton Hospital. I’m sorry, but it is a defining moment for me that I want to forget and cannot. We broke every rule of the intensive care ward thanks to a very dear friend who was in a position to pave the way. I slept in the room. We stayed through sessions others were thrown out of. At one point I apologized to a head nurse and she said, “Why apologize now, there are no more rules left to break?” It was a terrible time for everyone – but one that brought us all together. For the most part we are still all together as a result.
I’m glad Annie turns 54 today and is here to share it. It makes my “pity parties” seem petty compared to how hard she works everyday to improve her lot. Doesn’t mean I’ll give up the occasional pity party as I will never relish the role I’ve been handed. But for today we’ll focus on Annie. Happy Birthday.